WHAT IS CARCINOID CANCER? Carcinoid is part of a group of tumors called
neuroendocrine tumors that grow in the hormone producing cells, is listed with
the National Organization of Rare Disorders.
Because neuroendocrine (NET) cancer is considered rare and due to a lack of
public awareness the disease has had a low priority for medical research.
Current studies suggest that Carcinoid and Neuroendocrine tumors are not as rare
once thought.
Over 11,000 new patients are diagnosed each year and as many as 125,000
patients are living in the US today- AND the number of diagnoses is increasing
by more than 5% annually.
Carcinoid/NETs are also regularly overlooked during the diagnostic process.
Many patients go untreated for years and have been told the have another
disease. However, due to the generosity and selfless effort of many people,
progress IS being made!
If the tumors are found early and you get proper treatment, you can live a
long life. There are many 20 year survivors living in the USA. Failure to
diagnose the disease and provide proper treatment, however, has the most serious
consequence.
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