On Face Book I have been in touch with a variety of patient advocate groups organized around NET support. I've participated in some on-line chats and educational programs recently. This morning I saw a video of the Oncologist I'm seeing at Stanford describing a new drug called Lanreotide just approved by the FDA here in the US that can be taken instead of Octreotide injections which I am currently getting every 21 days. I knew about this before but it was cool to hear her discussing the study results on clinical trials that led to FDA approval. There was also a video of Dr. Wolltering from New Orleans who I went to see after I first got diagnosed and also went to hear him speak at a conference in North Carolina last year. I wish I knew how to post those video's here off of FB. I'll ask my IT-savvy husband and see if he can help me do it.
I'm really enjoying spring this year. I'm reading lots of affirmations, doing meditation and yoga and spending time with both my grandchildren and parents. My brother moved from Vashon to W. Seattle making it easier to get together too. My parents will be selling their long time Olympia home in the next few months and moving to Panorama City, a retirement community, in Lacey. It is perfect timing for them and mostly a happy occurrence.
I've enjoyed seeing many friends lately too. I'll be traveling to Portland and Silverton Oregon next week end to visit 6 different old friends! Our boating season will begin with a trip to Friday Harbor April 15th with the C-Dory boating group. This is an annual gathering that we always enjoy. Afterwards some boaters from Canada are going to come to Seattle for a few days and we look forward to having them over for dinner. Peter's daughters wedding shower is this Saturday and I've had the pleasure of doing a little bit of prep to help out on it. We're looking forward to going out with Peter's old childhood friends for dinner and music later in the month and another friend of mine is retiring with a fun a retirement party scheduled. Some of Peter's relatives are returning to Seattle to live at the end of the month so we'll host a mini Jamero family reunion here of sorts to welcome them. If all that wasn't enough Peter is treating me to a trip by boat to Rosario Resort on Orcas for my upcoming b-day in May. We'll stay in a wonderful room over looking the water on my birthday with little C-Dancer parked in the marina below. My friend Wanda from SLC Utah will be visiting our area (staying in Portland) at the end of May and I'll spend a day at the Olympus spa with Louise again. Peter and I had a great mini vacation to Vancouver BC at the beginning of the month visiting Stanly Park, Grenville Island and several art museums.
Jessica and Q got Paityn baptized on Easter. She looked so darling in her pretty dress. I still have the first cousin girls every Wednesday together. Kimani and I enjoy his visits and an occasional "over night" at Grandma and Grandpa's. He is looking forward to using the new fishing pole Grandpa Peter got him this year. All three grandkids can now say Grandpa Peter. :-)
 |
| | |||
| ||||
No comments:
Post a Comment